Page 246 - Demo

Chapter 7244Strengths and limitations A strength of the current study was the involvement of experts-by-experience in both the design and participation in the interview study. These individuals are trained to be involved in various stages of research projects and are able to represent a broader group of clients with intellectual disability receiving care. Another strength was the use of three different experience sampling applications and two different response scales (visual-analogue and Likert scales), which allowed participants to experience and report on differences in design. However, none of the participants mentioned any differences in design between the applications, other than their preference for either the visual-analogue or the Likert response scale.In the scoping review, we did not find studies with people with severe or profound intellectual disability, although these were not excluded based on the criteria. All of the included studies reported text-based experience sampling questionnaires, indicating that these were not suitable for people with severe or profound intellectual disability, and/or that this group was excluded from participation. Relatedly, all interview participants were adults with a mild intellectual disability. Therefore, the findings are not generalisable to adolescents or elderly, and people with moderate, severe, or profound intellectual disability. Another limitation was that we did not specifically ask the interview participants to consider the use of experience sampling for research or clinical purposes. This would have led to more differentiated responses and specific recommendations for tailoring experience sampling methods for research and clinical practice. Lastly, our study included relatively few measurements: around 24-30 prompts per individual depending on the application, compared to 6025 and 48 measurements3 in other feasibility studies.ConclusionsThis study showed important gaps in research on the accessibility of experience sampling methods for mental health of people with intellectual disability. Based on a scoping review and interviews with stakeholders, we recommend future studies to tailor experience sampling designs to the Annelieke Muller sHL.indd 244 14-11-2023 09:07