Page 242 - Demo

Chapter 7240DiscussionThe scoping review identified seven studies in which experience sampling was used for assessing mental health of people with intellectual disability, all of which were published from 2020 onwards. Compliance to the questionnaires was reported by three studies, and ranged between 34% to 95%.3,22 Two studies were specifically aimed to examine the acceptability and feasibility of experience sampling.3,25 In both studies, participants used an experience sampling application to report on mental health related outcomes, for 7 consecutive days3 and 60 consecutive days,25and reported on their experiences during follow-up interviews. Wilson and colleagues (2020) mostly described participants’ experiences with practical and technical difficulties, such as the comprehensibility of the questions and reasons for non-compliance. Hulsmans et al. (2023) provided a more comprehensive description of participants’ experiences and views regarding the study duration, number of prompts, and perceived gains and drawbacks from participating, in addition to reasons for non-compliance and dropout. Thus, findings regarding the acceptability and feasibility of experience sampling for this population have just started to emerge. Because the field of intensive longitudinal research has been rapidly evolving in the past decades,7 more experience sampling studies including people with intellectual disability may be expected.Interviews with adults with mild intellectual disability using experience sampling applications revealed a more rich and differentiated set of experiences. Within the first of the three domains from the Access to Care Framework,15 acceptability, sub-themes were value and usefulness and practical feasibility. Participants were divided about the usefulness of experience sampling for their own ability to communicate about feelings, and reported on reasons why using an experience sampling application would not fit well into their daily lives. For the domain availability, subthemes were installation and registration, language and text, and response scales. The applications were mostly easy to find and install. Participants expressed different preferences for the use of visual-analogue or Likert response scales. For the domain appropriateness, sub-themes were adapting the experience sampling design to the needs of users and adapting Annelieke Muller sHL.indd 240 14-11-2023 09:07