Page 233 - Demo

Experience sampling methods for mental health research in intellectual disability2317Table 2. continued.Authors Study aim(s) Compliance and drop-out Acceptability and feasibility of ESMHulsmans et al. (2023)To explore the feasibility of an experience sampling application, with both standardised and personalised items, for adolescents and young adults with a mild intellectual disability or borderline intellectual functioning who receive care in either an outpatient, residential or juvenile detention setting.Average compliance was 70%. Thirteen participants (26%) dropped out of the study. Participants who completed the 60-day study period had a daily compliance of 86%. Compliance was significantly higher (p <.001) among participants who used their own mobile phone, compared to participants who used a group device for completing the diaries.Most prominent reasons for non-compliance (among the participants who did not drop-out) included: forgetting to fill in the diaries (23%), being in the company of others (20%), and experiencing stress (20%). Things that would have helped participants to increase compliance included: more reminders by care professionals (23%), more app reminders (prompts) (11%), and questionnaire items being updated or altered during the study (14%). Reasons for dropping out of the study were: forgetting to fill in the diary (n = 4), frustrations with technical issues with the device or app (n = 3), stress in their personal lives unrelated to the study (n = 3), and the study being too intense (n = 1) or too boring (n = 1).Most participants were positive about their participation in the study: 39% of participants experienced it as pleasant, 22% as very pleasant, 37% as neutral, and 2% as unpleasant. The majority of participants (94%) would recommend their peers to participate.Sixty-nine percent of participants indicated that the study duration (60 days) was appropriate, 14% thought this was too short, and for 16% of participants, this was too long. For most participants, one prompt per day was appropriate (73%), 18% indicated that more prompts would have been better, and 8% preferred less than one prompt per day.Perceived gains from participating were: increased selfawareness (64%), receiving a gift-card (30%), reducing problematic behaviours (18%), and better communication with caregivers (18%). Ten percent of participants reported not having gained anything.Perceived drawbacks from participating were: technical issues with the device or app (18%), irrelevance of questionnaire items (14%), or difficulties finding an appropriate moment for completing the diary (8%). More than half (52%) of participants did not report any drawbacks.Hyde et al. (2021)To investigate the within-person dayto-day associations between subjective sleep and affect in adults with 22q11.2 deletion syndrome.Two participants (7%) with 22q11.2 deletion syndrome did not fill in the questionnaires about sleep and were therefore excluded. Average compliance not reported.Not reportedAnnelieke Muller sHL.indd 231 16-11-2023 09:26