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Chapter 6172Additional file 2TSC-PROMQuestionnaire for adults with Tuberous Sclerosis Complex (TSC)Explanation and instructionsWhat is this questionnaire about?You are filling in this questionnaire because you have Tuberous Sclerosis Complex.This questionnaire is about the complaints and limitations you experience.The questionnaire consists of the following domains:- Baseline information- Physical functions- Mental functions- Activities and participation- Social support- Quality of lifeHow to fill in this questionnaire?Read the instructions with every section carefully. Choose the answer that is most appropriate. Don’t worry if some questions appear not to apply to you. We have to ask the same questions to everybody.Explanation and examplesSome questions contain a short explanation. This explains the meaning of the mentioned term. If f.e. (for example) is used, one or more examples follow. Possibly these examples are not applicable to you, but they may help you understand the question better.TimeFilling in the questionnaire will take approximately 20 min.Annelieke Muller sHL.indd 172 27-11-2023 09:15