Page 173 - Demo

Development and validation of the TSC-PROM1716Self Proxy Reason for exclusionDuring the past month I was physically aggressive towards others (f.e. throwing things, kicking, hitting)- Frequency response option ‘Not at all’ >85%During the past month I tried to hurt myself- Frequency response option ‘Not at all’ >85%During the past month the individual worried about tumor growth- Frequency response options ‘Don’t know’ & ‘Not applicable’ >30%During the past month I worried about family planning (f.e. passing on TSC)During the past month the individual worried about family planning (f.e. passing on TSC)- Low factor loading- Monotonicity- Additionally for proxy: Frequency response options ‘Don’t know’ & ‘Not applicable’ >30%During the past month the individual worried about money (f.e. due to being unable to work or absences during hospital visits)- Frequency response options ‘Don’t know’ & ‘Not applicable’ >30%During the past month the individual worried about financial independency- Frequency response options ‘Don’t know’ & ‘Not applicable’ >30%During the past month the individual worried about social security (f.e. reimbursement of devices or care)- Frequency response options ‘Don’t know’ & ‘Not applicable’ >30%Functioning in daily lifeDuring the past month the individual was limited in planning and organizing- Frequency response options ‘Don’t know’ & ‘Not applicable’ >30%During the past month I was limited in getting along with strangers- Local independence (similar to C8)During the past month I was limited in washing and dressing myself- Frequency response option ‘Not at all’ >85%During the past month I was limited in walking independently- Frequency response option ‘Not at all’ >85%During the past month I was limited in caring for my health (f.e. taking medication)- Frequency response option ‘Not at all’ >85%During the past month the individual was limited in his/her financial independency- Frequency response options ‘Don’t know’ & ‘Not applicable’ >30%During the past month the individual was limited in making use of transportation (f.e. driving a car, riding a bike, taking public transportation)- Frequency response options ‘Don’t know’ & ‘Not applicable’ >30%Annelieke Muller sHL.indd 171 14-11-2023 09:07