Page 171 - Demo

Development and validation of the TSC-PROM1696ResultsItem reduction of the TSC-PROM self-report and proxy-report versions per domain with reasons for exclusion. Self Proxy Reason for exclusionPhysical functionsDuring the past month the individual was bothered by dizziness- Frequency response options ‘Don’t know’ & ‘Not applicable’ >30%During the past month I was bothered by problems eating (f.e. eating too much or too little, eating unusual things)- Local independence; This item is associated with the item ‘problems with stools (f.e. constipation or diarrhea)’. In clinic, there is generally less focus on stool problems although constipation is a clinically relevant problem, according to the experts. During the past month I was bothered byproblems with my hearing or ears (f.e. infections, hearing loss)During the past month the individual was bothered by problems with hearing or ears (f.e. infections, hearing loss)- Frequency response option ‘Not at all’ >85%- Low factor loadingDuring the past month I was bothered by heart or vascular problems (f.e. rhythm abnormalities)During the past month the individual was bothered by heart or vascular problems (f.e. rhythm abnormalities)- Frequency response option ‘Not at all’ >85%During the past month I was bothered by spasticity (high muscle tone)- Frequency response option ‘Not at all’ >85%Annelieke Muller sHL.indd 169 14-11-2023 09:07