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Chapter 5120Table 2. continued Reported outcomesFrequencyNumber of different outcome measurement instruments usedPROClinROObsROPerfOAnxiety 27 15 26 1 0 0Mental health (e.g., global, well-being, feelings, psychological wellness/distress, symptoms of mental disorder)27 16 18 7 2 0Social behavior 27 13 22 1 4 0Sleep 26 12 19 0 7 0Other / unclear 22 17 14 5 3 0Motor function 20 19 3 7 2 8Participation 18 11 13 0 5 0Personalized goals 14 6 13 1 0 0Emotion regulation 13 11 12 0 1 0Activity 11 7 9 0 2 0Syndrome-specific symptoms 10 8 5 5 0 0Academic skills 9 9 2 0 1 6Attention 9 9 5 1 3 0Repetitive behavior 9 2 8 1 0 0Aggression 9 1 1 0 5 0Anger 8 4 8 0 0 0Hyperphagia 8 1 7 1 0 0Pain 7 6 7 0 0 0Irritability 7 1 7 0 0 0Self-injurious behavior 6 5 5 1 0 0Eating behavior 5 4 5 0 0 0Epilepsy 5 2 5 0 0 0Psychiatric symptoms 5 3 1 4 0 0Self-efficacy 5 5 3 1 1 0Self-esteem 5 1 5 0 0 0Ataxia 4 3 0 4 0 0Neurological function 4 1 0 4 0 0Social support 4 3 4 0 0 0Stress 4 4 4 0 0 0Substance use 4 3 4 0 0 0Annelieke Muller sHL.indd 120 14-11-2023 09:07