Page 121 - Let them speak Towards a patient reported outcome measure set for

Mental Anxiety, sensory
integration, behavior,
anger, depressive
symptoms, self-
image, resilience,
feeling overwhelmed,
communication1
Overall mental health
Social Relationships, social
skills1
, participation1
Other Communication with
HCP, medication1, family
situation1, faith1
PROs emerging from focus groups and interviews
Anxiety, behavior,
depressive symptoms,
self-image, resilience,
anger1
, communication1
,
cognitive functioning1
,
trauma1
, sensory
integration1, feeling
overwhelmed1
Behavior (including eating
and drinking behavior),
anxiety, sensory integration,
communication, depressive
symptoms, trauma, anger,
cognitive functioning,
self-acceptance, self-
image1, resilience1, feeling
overwhelmed1, psychiatric
diagnoses (e.g., autism) 1
Overall mental health1
Relationships,
participation
Participation, relationships,
social skills
5
Adaptive functioning
Communication with
HCP, impact on family,
medication side-effects,
family planning1
Impact on family,
medication side-effects,
family planning1, family
situation1
Information facilities,
transition care1
Auxiliaries, individual’s
needs, mental healthcare1
access, transition care1
,
stigma1
119