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PROs emerging from focus groups and interviews
Part 2 – Wish to discuss with HCP
Individuals with (G)ID Caregivers Clinical experts
Physical- - -
Mental - - -
Social - - -
Other- - -
5
Part 2 – Wish to discuss with HCP (listed in order of times mentioned)
Individuals with (G)ID Caregivers Clinical experts
Physical Fatigue, pain, mobility,
physical abnormalities,
activities1
, skin problems1
, weight1
, itch1
Epilepsy, sexual
functioning, pain,
fatigue, gastrointestinal
symptoms, hypotonia,
sleep1
, activities1
,
mobility1, dental
problems1, length
and weight1, physical
abnormalities1, tumor
growth1
Sleep, epilepsy, length
and weight, respiratory
symptoms, gastrointestinal
symptoms, self-care,
fatigue, activities, mobility,
sexual functioning,
hypotonia, pain, vision and
hearing problems, chewing
and swallowing1
Overall health1
Cold or clammy hands1
Puberty1
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