Page 122 - Let them speak Towards a patient reported outcome measure set for

Chapter 5
Classifying PROs into a conceptual framework
All themes were assessed to determine whether they were PROs (e.g.,
anxiety) or other outcomes (e.g., communication with HCP) (48). In total,
24 unique PROs remained, which were classified into the conceptual
framework (Table 3). Information from the focus groups and interviews
was used to provide a conceptualization of the PROs within the conceptual
framework (Additional file 2).
Table 3. PROs classified into the conceptual framework.
PRO domain PRO subdomain
Overarching Quality of life1
1. Perceived health
Functioning 2. Physical functioning/activities 3. Mobility
4. Self-care
5. Social functioning/participation 6. Relationships
7. Participation
8. Mental functioning 9. Anxiety
10. Depressive symptoms
11. Anger
12. Sensory integration
13. Cognitive functioning
14. Communication
15. Sexual functioning
Symptoms 16. Fatigue
17. Pain
18. Sleep
19. Vision
20. Hearing
21. Respiratory symptoms
22. Chewing and swallowing
23. Itch
24. Gastrointestinal symptoms
1Part of the overall conceptual framework but was not mentioned as a PRO in the focus groups or
interviews.
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