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335Research data managementResearch data managementThe research followed ethical guidelines and was conducted in accordance with the principles of the Declaration of Helsinki. Research data management was conducted according to the Findability, Accessibility, Interoperability, and Reusability (FAIR) principles when applicable and possible. All manuscripts have been submitted open access, and open access supplementary materials were provided for transparency and reusability. Data sheets are available upon request from the corresponding author. For the TSC-PROM study and clinical trials, LimeSurvey, Research Electronic Data Capture (REDCap), and Castor EDC were used, respectively, which are secure, web-based software platforms designed to support data capture for research.Figures were created with Draw.io and Flaticon.com.Annelieke Muller sHL.indd 335 14-11-2023 09:08