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Reporting of genetic diagnoses in multidisciplinary intellectual disability care2658multidisciplinary ID care. Barriers for reporting genetic diagnoses to explain the ID in multidisciplinary care have been found to include lack of awareness of potential benefits, lack of communication and harmonization of coding, and difficulty interpreting the results.17 It may imply that many individuals with ID miss out on disorder-specific medical care, psychological care, and support. This is unfortunate, as a genetic diagnosis can provide detailed information on the prognosis of the disorder, associated somatic and neuropsychiatric manifestations, and targets for prevention, treatment, and management. It is also important for unaffected family members who might be at risk of passing on a genetic condition to their future children. As it may have impact on all life domains, awareness of all types of HCPs involved is necessitated to improve care.18Surprisingly, not all physicians who were involved in the care team had a reported genetic diagnosis in their medical files, while it was mentioned in one of the other care files, although not verified due to absence of a letter of a clinical geneticist. Coordinating physicians should have direct access to the genetic test results, which means they could inform and update the multidisciplinary team to enable personalized and disorder-specific care, and refer to expert centers where available. From a medical perspective, this may include each body system, including epilepsy management,19tumor screening,15 prevention for sensitivity to obesity20 and movement disorders,21 for which a dietician, physiotherapist, or occupational therapist should be involved as well. Without knowledge on the etiology, physicians will not identify and refer candidates who may benefit from disorder-specific care, including condition-specific guidelines or targeted treatments, such as indicated by the Treatable ID (Web) App.7Psychologists and behavioral therapists have a major role with regard to timely consultation of other experts, psychoeducation of care teams and families, treating complex behavioral manifestations, and providing information on appropriate behavioral interventions, guidance and mentoring, preventing frustration, crisis and overmedication.13 Increasing knowledge on syndrome-specific behavioral manifestations is available.22,23Annelieke Muller sHL.indd 265 14-11-2023 09:07