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                                    Experience sampling methods for mental health research in intellectual disability2177IntroductionIn mental health research, retrospective self-report measures such as questionnaires and interviews are widely used for capturing peoples’ experiences. These measures often rely on cognitive and communication skills, which can be challenging for people with limited cognitive abilities, such as intellectual disability. Self-report measures are therefore not always inclusive of this population,1 resulting in their underrepresentation in mental health research. However, the limited available research suggests that people with intellectual disability are as much if not more susceptible to mental health problems.2 The use of experience sampling may provide an alternative to traditional retrospective methods for assessing mental health, and evidence of the benefits of this method is starting to emerge.3In this study, we systematically created an overview of available studies on the feasibility and acceptability of experience sampling methods for assessing mental health of people with intellectual disability. In assessing available research it is important to take the perspectives of people with intellectual disability into account as the primary stakeholders. Our scoping review was therefore informed by questions deemed important by adults with mild intellectual disability who had familiarised themselves with this research method.Experience sampling is a method for repeated collection of information about people’s subjective experiences in real-time, over time, and across different contexts. Initially, this was done using pen and paper.4 Nowadays, experience sampling studies use digital data collection methods, such as smartphones.5 Researchers have been using experience sampling methods for assessing mental health from the early 1990s6 and this field has been rapidly evolving during the last two decades.7 As summarised by recent reviews, various mental health phenomena have been captured using experience sampling, such as emotion regulation,8 mood and anxiety,9 and general well-being5 in populations without intellectual disability. Experience sampling studies involving people with intellectual disability have only recently started to emerge, despite the potential benefits of the method for this target population. In experience sampling, participants repeatedly report on their current or very recent inner states, reducing the Annelieke Muller sHL.indd 217 14-11-2023 09:07
                                
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