Page 159 - Shared Guideline Development Experiences in Fertility Care

Key implications for patients and patients’ associations:
- Encourage patients and patients’ associations to contribute to the guideline development process since their involvement will help enhance the level of patient-centredness of clinical practice guidelines.
- Collaborate with health policymakers, guideline developers, and all allied stakeholders in prioritizing, de ning, developing, and maintaining clinical practice guidelines.
- Take a key role in scoping a clinical practice guideline.
- Introduce and implement tools, such as an online participatory tool, to
facilitate patient participation in guideline development programs and to
further explore its possibilities regarding major clinical issues.
- Involve patients in the guideline-indicator development process.
- Stress the importance of involvement in all di erent phases (i.e. scoping,
writing, and developing quality indicators) of the guideline development process and encourage associations’ members to be actively involved in guideline development to implement this approach.
Final conclusions and remarks
is thesis demonstrates the added value of involving patients in all phases of the guideline development process and of using a patient-centred approach therein; ‘shared guideline development’ is the future of guideline development. In fact, all involved healthcare professionals, their associations, patients, and policymakers are now in the lead to collaborate on implementing this concept. Online participatory tools could contribute to bringing shared guideline development to a higher level while transparently using patients’ input in the guideline development process.
7 157
Discussion