Page 158 - Shared Guideline Development Experiences in Fertility Care

Chapter 7
other instruments, such as Patient Reported Outcome Measurements for infertility (i.e. the FertiQol, QPP-IVF instrument, and the PCQ infertility).
Key implications for policy and practice
Implications for professionals’ associations and policymakers:
- Clinical Practice Guidelines should focus on clinical issues, which are relevant to all stakeholders, including patients.
- Facilitate patients to play a key role in scoping the guideline.
- e development of monodisciplinary guidelines, even those developed by a multidisciplinary development group, should not be permitted anymore.
- Explore patient-centred approaches, such as our network approach to
enhance shared guideline development.
- Collaborate with patients, health policymakers, guideline developers, and
all allied stakeholders in prioritizing, scoping, developing, and maintaining
clinical practice guidelines.
- Change the introduced term ‘quality standards’ into collaborative standards
since patients and all relevant stakeholders should be involved as well.
- Develop a uniform vision for the de nition and development process of all
quality documents that are part of quality standards.
- Ideally, include patients in the scoping phase to identify their needs for
tailored information and to select important questions for developing tools
that facilitate shared decision-making in the clinical setting.
- Introduce the online participatory tool to guideline development programs, further explore its possibilities regarding major clinical issues ( rst with the Dutch Federation of Patients), and assure the cooperation of professional
associations.
- Involve patients in the guideline-indicator development process.
- Create an e cient infrastructure for measuring quality indicators, including
the level of patient-centredness.
- Educate professionals on the importance of registering data on the quality
of care and their value in improving the quality of care.
- Stress the importance of patient involvement in all di erent phases (i.e. scoping, writing, and developing quality indicators) of the guideline development process and encourage associations’ members to be actively
involved in guideline development to implement this approach. 156