Page 47 - Demo

Impact of the CCA on recorded involuntary care452enable care organisations to reflexively monitor (May et al., 2009) their efforts to act in line with the new Act, and to steer implementation of methods to pursue self-determination and voluntary care or promote reduction of involuntary care, insight into the volume of registrations is crucial (Frederiks et al., 2017; Schippers et al., 2018). Systematically gathered evidence based on such records may also inform the evaluation of the effectiveness of law and policies to improve its effects and reduce unwanted side effects (May et al., 2009). In the field of intellectual disability research in the Netherlands, the use of large administrative datasets gathered by care organisations is relatively new. Compared to other countries with well-developed long-term care systems, Dutch long-term care is decentralised across hundreds of small to large organisations providing care across the country. Each organisation decides on their own policies, systems, and standards for keeping care records and for facilitating research on these data (Ras et al., 2022). The current study was conducted with a care organisation that had committed from 2009 on to structural collaboration with universities, including investment in information technology development, data management capacity, and data governance for research. Having mutual commitment may mitigate the risk for care organisations of spending resources to create %u2018data cemeteries%u2019 and may increase the scientific value that administrative data may have. Demonstrations of using administrative data to answer scientific questions may stimulate other researchers to submit research proposals for such data as well and stimulate policy makers and stakeholder organisations to ask questions directly related to practice. For example, the infrastructure of this organisation facilitated one of the first studies that charted the impact of COVID-19 countermeasures on incidents reported within long-term care (Schuengel et al., 2020), which subsequently was cited in policy briefs and reports informing pandemic policies (e.g., Van Giessen et al., 2020). During the implementation of the CCA, the COVID-19 pandemic started, which was accompanied by drastic measures on 16 March 2020 for all people in the Netherlands (Schuengel et al., 2020). On top of these general measures, Dutch long-term care organisations reduced their operations to safeguard continuity of basic care and minimise the risk of vulnerable