Page 29 - Let them speak Towards a patient reported outcome measure set for
P. 29
Outcomes and instruments
Conclusions This scoping review of current practice reveals a myriad of
outcomes and outcome measurement instruments for clinical trials in
GNDs and ID. This complicates generalization, evidence synthesis, and
evaluation. It underlines the need for consensus on suitability, validity and
relevancy of instruments, ultimately resulting in a core outcome set. A
series of steps is proposed to move from the myriad of measures to a more
unified approach.
2
27
