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Chapter 7162This ensures that the presence of MID becomes known to GP assistants, locum GPs, and professionals to whom referrals are made (Chapters 5 and 6). 6 Preferably, not only the presence of MID, but also the additional communication and support needs for this specific patient should be registered and communicated. Most people with an MID do not mind if their ID is registered in the medical record and shared with other professionals during a referral (Chapter 5). 5Although practitioners acknowledge the benefits of MID registration, it is still done to just a limited extent in primary care, both internationally and nationally (Chapter 3). 15 In the UK, it is estimated that 75% of patients with ID in primary care are not registered as such, mostly people with MID. 15 This is even despite a financial incentive from the government that provides practitioners with additional compensation when they have registered patients with ID in their practice. The reasons in the UK for this high percentage are unclear coding, the use of different ID definitions, and patients not having an official diagnosis. 15 Therefore, in 2019, the National Health Service (NHS) established a guideline to enhance the identification of individuals with intellectual disabilities in general practices. 16In the Netherlands, there are no uniform agreements on whether and how a practitioner should register MID in the medical record. As a result, this registration occurs in various inconsistent ways (Chapter 3): 6 in the episode list, in a note, or with an International Classification for Primary Care (ICPC) code, of which version 2 is currently mostly used by Dutch GPs. 17 The most commonly used ICPC code is P85, which stands for mental retardation. This code lacks nuances and is perceived as stigmatizing (Chapter 3). 6 In the newly developed ICPC version 3 there is, unlike version 2, the possibility to registrate functioning or function-related aspect of patients, including nuances in the level of ID and communication needs. 18 However, ICPC version 3 needs to be further implemented in GP practices, and agreements should be made regarding a consistent method of MID registration.Katrien Pouls sHL.indd 162 24-06-2024 16:26