Page 94 - Demo

Chapter 492The ADAMS, considered a psychometrically sound instrument among individuals with ID,51 will be used to screen for symptoms of anxiety, depression and mood disorders.The SCQ (originally the Autism Screening Questionnaire (ASQ)) will be used to assess the severity of ASD symptoms.71–74 The SCQ current version will be used as it enables us to screen for ASD, to compare overall levels or severity of ASD symptoms, and to assess current ASD symptoms and change over time in both young and older children, adolescents, and adults. The SRS-2 is a widely used measure of ASD symptoms for social behavioral problems in children and adults.53 It may not be suitable for patients with a developmental age below four years. It will therefore be filled out when applicable, depending on the developmental age as assessed by the VABSIII during baseline.59The SSP is a commonly used shortened form of Dunn’s Sensory Profile caregiver questionnaire,75 containing 38 items measuring sensory features, organized into seven subscales. The total score will be used to measure sensory functioning.76Reducing severe behavioral manifestations may have benefits for family and caregivers. Therefore, we chose the parenting stress questionnaire (OBVL) which is applicable to children of all ages and has been validated for institutions for youth care, including mild ID as well.55Furthermore, GAS and the PQ enable us to focus on personalized and for participants relevant targets, also reflecting the treatment target.56,77 GAS is an individualized outcome measure, involving goal selection and scaling standardized to calculate the extent to which an individual’s goal is met. Patients and caretakers will select their own specific goals together with their treating physician/therapist. It is a measurement instrument that is very sensitive to change, in particular in small and heterogeneous patient populations.56 The PQ is used as a symptom list to compare assessments of personalized goals with those measured by GAS.57 Adding the PQ allows us to compare outcomes of standardized and personalized tools. Annelieke Muller sHL.indd 92 14-11-2023 09:07