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Reporting of genetic diagnoses in multidisciplinary intellectual disability care25585,634 individuals14,549 individuals in electronic care system13% of total ID population in the Netherlands8,915 individuals excluded:- < 2 months receiving care from 's Heeren Loo- No explicit consent- Receiving care from expertise center genetic syndromes380 individualsa. Medical filesb. Psychodiagnostic filesc. Professional caregivers' filesSample size calculation, random selectionFigure 1. Flow diagram depicting the selection procedure of individuals eligible for electronic care file search. ProceduresThe electronic care system of ‘s Heeren Loo contained data on 14,549 individuals (accessed at September 6, 2021), which is approximately 13% of the total ID population in the Netherlands.16 Of these, around 6,200 individuals live within sheltered care facilities of the organization. The sample size for this study was based on a population size of 14,549 individuals with a standard deviation of 50%, a sampling error of 5%, and confidence interval of 95%, yielding a required sample size of ≥374 individuals. We included 380 individuals who met our inclusion criteria.Electronic care files were searched for the following demographic information including type of support and care: age, sex, whether the individual had a legal representative and their relationship to the individual (e.g., family member or non-family member such as professional or friends), ID physician involvement, living situation and whether there was medical care on site. Files were reviewed to assess what information was provided on the following clinical information: severity of ID based on clinical Annelieke Muller sHL.indd 255 14-11-2023 09:07