Page 184 - Demo

Chapter 6182TSC-PROMQuestionnaire for adults with Tuberous Sclerosis Complex (TSC)Explanation and instructionsWhat is this questionnaire about?You are filling in this questionnaire on behalf of your relative or client with Tuberous Sclerosis Complex.This questionnaire is about the complaints and limitations he/she experiences.The questionnaire consists of the following domains:- Baseline information- Physical functions- Mental functions- Activities and participation- Social support- Quality of lifeHow to fill in this questionnaire?Read the instructions with every section carefully. If possible, try and give the answer that you think your relative/client would give. A statement may be for example: during the last month there was ‘worrying or brooding’.What matters is not if you were worried, but if your relative/client was worried.Don’t worry if some questions appear not to apply to your relative/client. We have to ask the same questions for everybody.In the rest of the questionnaire we will call your relative/client ‘the individual’.Explanation and examplesSome questions contain a short explanation. This explains the meaning of the mentioned term. If f.e. (for example) is used, one or more examples follow. Possibly these examples are not applicable to you, but they may help you understand the question better.TimeFilling in the questionnaire will take approximately 20 min.Annelieke Muller sHL.indd 182 14-11-2023 09:07