Page 85 - Shared Guideline Development Experiences in Fertility Care

Table 1. Final set of the patients’ top-5 and top-3 recommendations (n = 23) for the 5 sections, ranked by importance to the quality of fertility care as formulated on the wiki website.
Wiki for patient participation
Section, rank, and recommendation
General care
1 I want insurance companies to reimburse six attempts at in vitro fertilizationb
2 I want insurance companies to start counting in vitro fertilization attempts
only a er oocyte retrieval or even a er embryo transfer has been performedb
3 I want my doctor to practice empathy, instead of only working on the
technical or nancial part
4 I want the hospital to have separate waiting rooms for pregnant women and
couples being treated for infertility
5 I want to be able to arrange appointments during the daytime as well as in the
evenings
General practice care
1 I want my gynaecologist and GPc to have good communication, so my GP knows what is going on with us
2 I want my GP to make a referral immediately a er we have been trying to conceive for a year
3 I want to have my rst medical consultation with my gynaecologist within 1 month a er referral
4 I want my GP to be informed of possible causes of infertility, in both women and men
5 I want my GP to pay attention to nonmedical issues, such as stress, anxiety, relational problems, and sexuality
Gynaecologic care
1 I want also to be able to receive treatments on weekends (Saturdays and Sundays)
2 I want all members of the fertility treatment team to apply one policy regarding my infertility treatment
3 I want my gynaecologist to inform me of all possible fertility treatment options, even if these are outside the hospital
4 I want my gynaecologist to inform me about the di erent phases of treatment and their expected time span
5 I want assisted hatching to be possible or available in the Netherlands
Urologic care
1 I want my urologist and gynaecologist to have good communication
2 I want to be informed of the investigations that are to be performed by the
urologist
3 I want to have a permanent urologist who is specialized in infertility
4 I want to have a consultation with a urologist within 1 month a er referral
5 I want my urologist to involve my partner in the conversation
Laboratory
1 I want to be informed as soon as possible when our embryos do not divide correctly
2 I want Dutch laboratories to share protocols and learn from each other’s experiences
3 I want to be informed of the causes of nonviability of our frozen embryos, if appropriate
Subsection (aspect of care)a
General General
Sta attitudes Organization Organization
Referral Referral Organization General Communication
Organization
Organization
Information provision Information provision erapy
Organization Examination
Organization Organization Communication
Organization Organization Organization
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a Subsections were derived from the website’s structure and located by the user.
b Recommendation was excluded, since it fell out of the scope of the clinical practice guideline. c General practitioner.
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