Page 83 - Shared Guideline Development Experiences in Fertility Care

recommendations by ranking the top 5 or top 3 in each section (we had eliminated the remaining section) according to their importance to high-quality fertility care, we selected 23 recommendations (4 sets of top 5 and 1 set of top 3) for eligibility assessment by the CPG development group (Table 1). We excluded 2 insurance- related recommendations, since they did not meet the scope of the CPG. e CPG development group accepted all of the remaining 21 recommendations, which were integrally integrated into the CPG. More than half (n = 11) of the nal set of recommendations concerned the organization of care. Similar to the quality assessment scale used in evidence-based recommendations (levels of evidence A–D) [35], a level of P (patients) was provided for the patients’ recommendations and formulated as “Patients would like to...”. Participants were informed by email, on the wiki website, and through the websites of Freya and the professional associations of the nal CPG that included the literally eligible recommendations of the patients.
Evaluation of Wiki System Quality 4
Online Evaluation Questionnaire
Of the 80 patients who participated in the prioritization, 45 completed the questionnaire. Of these, 53% (n = 24) visited FreyaWIKI at rst while completing the questionnaire, and 93% (n = 42) had never worked with a wiki, other than this one, before. Other background characteristics of the respondents are presented in Table 2. Facilitators of adoption of the wiki, de ned as >50% of respondents agreeing (scores 1 and 2) to the relevant statements, were not identi ed. Barriers, de ned as >50% disagreeing (scores 4 and 5) to the relevant statements, were identi ed in 3 of the 5 sections: ease of use, content of the website, and value of the wiki methodology (Table 3). In decreasing order of the proportion of evaluators who disagreed with the relevant statement, the main identi ed barriers concerned the ndability (82%) and accessibility (78%) of the website, and the suitability of this wiki for obtaining recommendations for CPG development (71%).
Reported advantages of the wiki were the privacy they experienced on the website, the structure of the website linking recommendations to sections on care delivered by fertility professionals, ease of navigation through the website, and the additional value of the wiki website as a source of information and as an opportunity to provide feedback to the care services.
Wiki for patient participation
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