Page 162 - Shared Guideline Development Experiences in Fertility Care

Chapter 7
47. van Wersch A, Eccles M. Involvement of consumers in the development of evidence based clinical guidelines: practical experiences from the North of England evidence based guideline development programme. Qual Health Care 2001;10:10-16.
48. Bastian H. Raising the standard: practice guidelines and consumer participation. Int J Qual Health Care 1996;8:485-490.
49. Rogers WA. Are guidelines ethical? Some considerations for general practice. Br J Gen Pract 2002;52:663-668.
50. Diaz Del Campo P, Gracia J, Blasco JA et al. A strategy for patient involvement in clinical practice guidelines: methodological approaches. BMJ Qual Saf 2011;20:779-84.
51. Legare F, Boivin A, van der Weijden T et al. Patient and public involvement in clinical practice guidelines: a knowledge synthesis of existing programs. Med Decis Making 2011;31:E45-74.
52. Krahn, M, Naglie G. e next step in guideline development: incorporating patient preferences. J Am Med Assoc 2008;300:436-38.
53. Tuil WS, Verhaak CM, Braat DD et al. Empowering patients undergoing in vitro fertilization by providing Internet access to medical data. Fertil Steril 2007;88:361-368.
54. Samoocha, D, Bruinvels DJ, Elbers NA et al. E ectiveness of web-based interventions on patient empowerment: a systematic review and meta-analysis. J Med Internet Res 2010;12:23.
55. Irizarry T, DeVito Dabbs A, Curran CR. Patient Portals and Patient Engagement: A State of the Science Review. J Med Internet Res 2015;17:e148.
56. van der Eijk, M, Faber MJ, Aarts JW et al. Using online health communities to deliver patient-centered care to people with chronic conditions. J Med Internet Res 2013;15:115.
57. Aarts JWM, Vennik F, Nelen WL et al. Personal health communities: a phenomenological study of a new health‐care concept. Health Expectations 2015;18:2091-2106.
58. Archambault PM, van de Belt TH, Grajales III et al. Wikis and collaborative writing applications in health care: a scoping review. J Med Internet Res 2013;15:210.
59. van de Belt TH, Faber MJ, Knijnenburg JM et al. Wikis to facilitate patient participation in developing information lea ets: rst experiences. Informatics for Health and Social Care 2014;39:124-139.
60. Souter VL, Penney G, Hopton JL et al. A. Patient satisfaction with the management of infertility. Hum Reprod 1998;13:1831-1836.
61. Schmidt L, Holstein BE, Boivin J et al. High ratings of satisfaction with fertility treatment are common: ndings from the Copenhagen Multi‐centre Psychosocial Infertility (COMPI) Research Programme. Human Reprod 2003;18:2638-2646.
62. van Empel IW, Aarts JW, Cohlen BJ et al. Measuring patient-centredness, the neglected outcome in fertility care: a random multicentre validation study. Human Reprod 2010;25:2516-2526.
63. Dancet EA, D’Hooghe TM, Sermeus W et al. Patients from across Europe have similar views on patient-centred care: an international multilingual qualitative study in infertility care. Hum Reprod 2012;27:1702-1711.
64. Schleedoorn MJ, Nelen WLDM, Dunselman GAJ et al. Selection of key recommendations for the management of women with endometriosis by an international panel of patients and professionals. Human Reprod 2016;31:1208-18.
65. Upho EP, Wennekes L, Punt CJ et al. Development of generic quality indicators for patient-centered cancer care by using a RAND modi ed Delphi method. Canc Nursing 2012;35:29-37.
66. Kotter T, Blozik E, Scherer M. Methods for the guideline-based development of quality indicators--a systematic review. Implement Sci 2012;7:21.
67. Dutch Federation of University Medical Centres (NFU). Registratie aan de bron. Visie op documentatie en gebruik van zorggegevens 20132020. Utrecht: NFU, 2013.
68. Silverman D. Doing qualitative research. 3rd edition. London: Sage Publications Ltd, 2009.
69. Fitzpatrick R, Boulton, M. Qualitative methods for assessing health care. Quality Health Care
1994;3:107.
70. Arain M, Campbell MJ, Cooper CL et al. What is a pilot or feasibility study? A review of current
practice and editorial policy. BMC Med Res Methodology 2010;10:67.
160