Page 81 - Let them speak Towards a patient reported outcome measure set for
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Chapter 4
Patient reported outcomes
used in clinical trials and core
outcome sets for individuals
with genetic intellectual
disability: a scoping review
Nadia Y. van Silfhout, Maud M. van Muilekom, Clara D. van Karnebeek,
Joost G. Daams, Lotte Haverman, Agnies M. van Eeghen
Journal of Neurodevelopmental Disorders. 2025, 17(1), 43.

