Page 57 - Let them speak Towards a patient reported outcome measure set for
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Chapter 3
PROs for RARE: Protocol
for development of a core
patient reported outcome set
for individuals with genetic
intellectual disability
Nadia Y. van Silfhout, Maud M. van Muilekom, Clara D. van Karnebeek,
Lotte Haverman, Agnies M. van Eeghen
Orphanet Journal of Rare Diseases. 2024, 19(1), 354.
