Page 252 - Let them speak Towards a patient reported outcome measure set for

Addendum
Authors’ contribution per chapter
Chapter 2: Navigating the outcome maze: a scoping review of outcomes
and instruments in clinical trials in genetic neurodevelopmental disorders
and intellectual disability
Authors: Annelieke R. Müller, Nadia Y. van Silfhout, Bibiche den Hollander,
Dick H.C. Kampman, Lianne Bakkum, Marion M.M.G. Brands, Lotte
Haverman, Caroline B. Terwee, Carlo Schuengel, Joost G. Daams, David
Hessl, Frits A. Wijburg, Erik Boot, Agnies M. van Eeghen.
AM and AvE were involved in the study concept and design, had a major role
in the acquisition of data, analysis and interpretation of data, and drafted
the manuscript. NvS had a major role in the acquisition, analysis and
interpretation of data, and revised the manuscript. BdH, MB, and EB were
involved in the study concept and design, had a major role in the acquisition
of data, and revision of the manuscript. DK had a major role in processing
and the analysis of data. LB had a major role in the acquisition of data,
and revised the manuscript. LH was involved in the study concept and
design and interpretation of data. CT was involved in the study design and
concept and interpretation of data, revised the manuscript for content. CS
and FW were involved in the study concept and revised the manuscript. JD
performed the search strategy and contributed to the analysis. DH revised
the manuscript for content.
Chapter 3: PROs for RARE: protocol for development of a core patient
reported outcome set for individuals with genetic intellectual disability
Authors: Nadia Y. van Silfhout, Maud M. van Muilekom, Clara D. van
Karnebeek, Lotte Haverman, Agnies M. van Eeghen.
NvS, MvM, LH, and AvE conceived and designed the study. NvS wrote the
first version of the manuscript. MvM, LH, AvE, and CvK provided important
revision on the manuscript. All authors read and approved the final
manuscript.
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