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Table 6. Test-retest reliability of the core PROM set for caregivers of children, adults, and caregivers of adults.
Core PROM set
ICC (95% CI) N Core PROM set adults ICC (95% CI) N Core PROM set
ICC (95% CI) N4
caregivers of children
caregivers of adults
NRS Well-being 0.44 (0.13 – 0.68) 33 PROMIS Global021 0.59 (0.25 – 0.80) 25 PROMIS Global021 0.53 (0.17 – 0.77) 24
NRS Health 0.25 (-0.11 – 0.55) 33 PROMIS Global011 0.55 (0.21 – 0.77) 25 PROMIS Global011 0.60 (0.28 – 0.80) 24
PROMIS Mobility2 0.90 (0.81 – 0.95) 32 PROMIS Physical
0.92 (0.82 – 0.96) 25 PROMIS Physical
0.87 (0.70 – 0.94) 22
Function2
Function2
PROMIS Peer
0.88 (0.76 – 0.94) 32 PROMIS Social Roles
0.88 (0.74 – 0.94) 25 PROMIS Social Roles and
0.72 (0.45 – 0.87) 23
Relationships2
and Activities2
Activities2
PROMIS Global041 0.83 (0.68 – 0.91) 33 PROMIS Global041 0.45 (0.09 – 0.71) 25 PROMIS Global041 0.34 (-0.07 – 0.65) 24
PROMIS Anxiety2 0.77 (0.59 – 0.88) 32 PROMIS Anxiety2 0.78 (0.44 – 0.92) 15 PROMIS Anxiety2 0.78 (0.70 – 0.91) 17
PROMIS Depressive
0.80 (0.63 – 0.90) 32 PROMIS Depression2 0.75 (0.51 – 0.88) 25 PROMIS Depression2 0.82 (0.61 – 0.92) 23
Symptoms2
PROMIS Anger3 0.83 (0.68 – 0.91) 32 PROMIS Anger3 0.42 (0.50 – 0.69) 25 PROMIS Anger3 0.68 (0.38 – 0.85) 23
PROMIS Cognitive
0.78 (0.59 – 0.88) 32 PROMIS Cognitive
0.54 (0.18 – 0.77) 25 PROMIS Cognitive
0.75 (0.47 – 0.89) 23
Function3
Functioning – Abilities3
Functioning – Abilities3
PROMIS Fatigue2 0.65 (0.39 – 0.81) 32 PROMIS Fatigue2 0.80 (0.59 – 0.91) 25 PROMIS Fatigue2 0.68 (0.37 – 0.85) 22
NRS Fatigue 0.38 (0.06 – 0.63) 33 NRS Fatigue 0.37 (0.01 – 0.65) 25 NRS Fatigue 0.52 (0.15 – 0.76) 24
PROMIS Sleep
0.84 (0.70 – 0.92) 32 PROMIS Sleep
0.76 (0.53 – 0.89) 25 PROMIS Sleep
0.61 (0.27 – 0.82) 23
Disturbance2
Disturbance2
Disturbance2
NRS Sleep 0.65 (0.40 – 0.81) 33 x x x x x x
NRS Pain 0.71 (0.50 – 0.85) 33 NRS Pain 0.69 (0.40 – 0.85) 25 NRS Pain AIADH 0.66 (0.42 – 0.82) 33 AIADH 0.59 (0.27 – 0.80) 25 AIADH FVQ-CYP 0.56 (0.27 – 0.76) 33 Health Monitor CBS 0.56 (0.23 – 0.78) 25 Health Monitor CBS 0.68 (0.40 – 0.85) 24
PROMIS Nausea and
0.76 (0.56 – 0.87) 32 PROMIS Nausea and
0.50 (0.15 – 0.74) 25 PROMIS Nausea and
0.35 (-0.04 – 0.66) 24
0.43 (0.02 – 0.71) 24
0.66 (0.35 – 0.84) 23
Vomiting GISX491
Vomiting GISX491
Vomiting GISX491
PROMIS Constipation
0.51 (0.21 – 0.73) 32 PROMIS Constipation
0.42 (0.03 – 0.70) 25 PROMIS Constipation
0.40 (-0.02 – 0.70) 23
GISX641
GISX641
GISX641
7
Evaluating the core PROM set
