Page 108 - Let them speak Towards a patient reported outcome measure set for

Chapter 5
or physiotherapy. Interviews were moderated by the investigator (NvS)
or an assistant (MKH) if concurrent to another focus group or interview.
Moderators had no prior professional relationships with participants. Before
the focus groups and/or interviews, assistants received a short training on
conducting the sessions. Pictographs were used during focus groups and
interviews with individuals with (G)ID to enhance their comprehension. At
the beginning of the focus group or interview, the aim of the study was
explained. The focus group or interview was divided into two parts:
Part 1 -  To help participants explain the impact of (G)ID on daily life, the
‘Complain and Cheer wall’ technique was used (40). Participants
were asked to write down the negative impact of (G)ID on a flip chart
(the ‘Complain wall’), and the positive impact of (G)ID on another flip
chart (the ‘Cheer wall’) or a digital equivalent. Afterwards, a (group)
discussion took place on the identified themes.
Part 2 -  To identify which themes were relevant for discussion during
consultation with a HCP, the ‘Brainstorming’ technique was used
(40). Participants were asked to write the themes on a flip chart
or a digital equivalent under one of the following health domains:
physical functioning, mental functioning, and social functioning.
Afterwards, a (group) discussion took place on the identified
themes.
Analysis
Audio recordings were transcribed verbatim through an external
organization (Transcript Online). Transcripts were imported and analysed in
MAXQDA (2018) using thematic analysis in psychology (41): 1) highlighting
relevant parts of the transcript, 2) organizing text into meaningful groups
and selecting initial codes for these groups, 3) merging the initial codes into
themes, 4) revising and refining themes, and 5) defining and structuring
the final themes. The first 25% of the transcripts were double coded by
two researchers (NvS and TvG, or NvS and MvM). Discrepancies were
discussed until consensus was reached on the themes. The remaining
transcripts were coded by one researcher (NvS). Data collection continued
until data sufficiency was reached (meaning that the collected data was
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