Page 143 - Bladder Dysfunction in the Context of the Bladder-Brain Connection - Ilse Groenendijk.pdf

Long-term results of continent catheterizable urinary channels 141
for other questionnaire results. Of the 10 patients who answered “some leakage from the stoma, but 1 pad is enough”, 4 had undergone a concomitant ileocystoplasty during construction of the CCUC. Of the 9 patients with some urethral incontinence, 5 patients (all female) had undergone a concomitant ileocystoplasty.
Table 4. Questionnaire results. Abbreviations: PGI-I; patient global impression of improvement.
N = 24
PGI-I
1. Very much better
9
2. Much better
8
3. A little better
3
4. No change
1
5. A little worse
2
6. Much worse
1
7. Very much worse
0
Continence stoma
Dry
11
Some leakage, pad enough
10
Incontinent/catheter/other
1/1/1
Continence urethra
Yes
9
No
15
Catheterization stoma*
Always easy, no pain
9
Easy, sometimes problematic
10
Most of the time problematic
2
Always problematic
2
Would you advise this surgery to others?
Yes
22
No
2
*Catheterization stoma: 1 missing
DISCUSSION
Twelve of 41 patients had remained entirely complication-free after the construction of a CCUC for different indications. The other 29 patients presented with superficial stomal stenosis, stomal or urethral UI, stenosis at conduit-bladder level, pain or urosepsis and 20 of them needed at least one reoperation. Furthermore, the perceived improvement was ‘much better’ and 22 of 24 patients would recommend this surgery to others. Ef- fective patient counseling before constructing a CCUC is important, as shared decision
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