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Reference list
1. Nilsen ES, Myrhaug HT, Johansen M et al. Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane Database Syst Rev 2006;3:CD004563.
2. Institute Of Medicine (IOM). Clinical Practice Guidelines we can Trust. Washington, DC: National Academy Press, 2011.
3. van Wersch A, Eccles M. Involvement of consumers in the development of evidence based clinical guidelines: practical experiences from the North of England evidence based guideline development programme. Qual Health Care 2001;10:10-6.
4. Crawford MJ, Rutter D, Manley C et al. Systematic review of involving patients in the planning and development of health care. BMJ 2002;325:1263.
5. Burgers JS, Fervers B, Haugh M et al. International assessment of the quality of clinical practice guidelines in oncology using the Appraisal of Guidelines and Research and Evaluation Instrument. J Clin Oncol 2004;22:2000-7.
6. Bastian H. Raising the standard: practice guidelines and consumer participation. Int J Qual Health Care 1996;8:485-90.
7. Gagliardi AR, Brouwers MC, Palda VA et al. How can we improve guideline use? A conceptual framework of implementability. Implement Sci 2011;6:26.
8. AGREE Collaboration. Appraisal of Guidelines Research and Evaluation (AGREE Instrument).
London, 2001. URL: http://www.agreetrust.org Archived by WebCite® at http://www.webcitation. 4 org/65UXoyUUk
9. Schunemann HJ, Fretheim A, Oxman AD. Improving the use of research evidence in guideline development: 10. Integrating values and consumer involvement. Health Res Policy Syst 2006;4:22.
10. Rogers WA. Are guidelines ethical? Some considerations for general practice. Br J Gen Pract 2002;52:663-8.
11. National Institute of Clinical Excellence (NICE). e guidelines’ manual. London: NICE, 2009. URL: www.nice.org.uk Archived by WebCite® at http://www.webcitation.org/65UXx2saM
12. Scottish Intercollegiate Guidelines Network (SIGN). SIGN 50: A guidelines’ developer handbook. Edinburgh: SIGN, 2008. URL: http://www.sign.ac.uk/pdf/sign50.pdf Archived by WebCite® at http:// www.webcitation.org/65UY1tSVw
13. Diaz Del Campo P, Gracia J, Blasco JA et al. A strategy for patient involvement in clinical practice guidelines: methodological approaches. BMJ Qual Saf 2011;20:779-84.
14. Legare F, Boivin A, van der Weijden T et al. Patient and public involvement in clinical practice guidelines: a knowledge synthesis of existing programs. Med Decis Making 2011;31:E45-74.
15. Boivin A, Currie K, Fervers B et al. Patient and public involvement in clinical guidelines: international experiences and future perspectives. Qual Saf Health Care 2010;19:e22.
16. Krahn M, Naglie G. e next step in guideline development: incorporating patient preferences. J Am Med Assoc 2008;300:436-8.
17. Cross M. How the internet is changing health care. BMJ 2008;337:a883.
18. Giustini D. How Web 2.0 is changing medicine. BMJ 2006;333:1283-84.
19. Heilman JM, Kemmann E, Bonert M et al. Wikipedia: a key tool for global public health promotion. J Med Internet Res 2011;13:e14.
20. Trevena L. WikiProject medicine. BMJ 2011;342:d3387.
21. Haagen EC, Tuil W, Hendriks J et al. Current Internet use and preferences of IVF and ICSI patients.
Hum Reprod 2003;18:2073-8.
22. Weissman A, Gotlieb L, Ward S et al. Use of the internet by infertile couples. Fertil Steril 2000;73:1179-
82.
23. Wischmann T. Implications of psychosocial support in infertility--a critical appraisal. J Psychosom
Obstet Gynaecol 2008;29:83-90.
24. Gnoth C, Godehardt E, Frank-Herrmann P et al. De nition and prevalence of subfertility and infertility. Hum Reprod 2005;20:1144-7.
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