Page 89 - Shared Guideline Development Experiences in Fertility Care

All 3 interviewees regarded the website as a valuable source of information, rather than as a tool for modifying recommendations for CPG development. ey mentioned that the content of the wiki had been helpful to them in searching for information on experiences regarding infertility treatment and in searching for recognition of their own experiences. Suggestions to improving the awareness of essence of use were suggested within improving the clearness of instructions.
Discussion
Principal Results
In this study, we showed that the wiki is a feasible tool to ensure active patient participation in the development of a Dutch multidisciplinary CPG on
infertility. e high numbers of page views (36,473), unique visitors (298), and recommendations formulated (289) implies patients’ willingness and ability to 4 contribute to CPGs through a wiki-based method. We also showed that such a
wiki is a useful information source for patients.
Second, we gained a nal set of 21 selected recommendations, which were assessed as being eligible to be integrated directly and transparently into the CPG. ird, patients had positive views on the experienced privacy, ease of navigation, divisional structure of the wiki, and its potential be ts. A total of 98% of the patients would recommend the website and 84% would participate again in a similar project. is study also provided some important suggestions to improve this participatory tool for patients in the development of CPGs, concerning ease of use, content and layout of the website, and characteristics of the wiki tool.
Comparison with Existing Techniques
Several studies on specialized medical wikis (e.g., wikis that fall outside the scope of a general encyclopaedia) have been published, but most particularly focus on education of medical students [36] or collaboration between health care professionals [37,38], rather than on patients, and did not include a process evaluation. Only Gupta and colleagues [39] and Archambault [40] involved a group of preselected patients as well as professionals in the development of an asthma action plan through a wiki. However, results are premature, since this study was conducted over a very short time period (weeks), and a wiki needs more time to build content (approximately 7–8 months) [41]. Furthermore, their evaluation of
Wiki for patient participation
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