Page 73 - Shared Guideline Development Experiences in Fertility Care

in the CPG development group. However, for direct patient participation in this guideline, we applied a wiki concurrently with this guideline development phase.
Study Objectives
e objective of this study was to assess the feasibility of the wiki as a participatory tool for patient participation in CPG development. e feasibility of the wiki was determined by three end points: (1) use of the wiki and users’ characteristics (number of page views and visitors), (2) wiki content quality, particularly the assessment of various aspects of the nal set of unique recommendations (i.e., number, content, and their eligibility for integration into the CPG) for high-quality fertility care, and (3) wiki system quality (i.e., patients’ facilitators of and barriers to adoption of this wiki as a participatory tool for direct patient involvement in CPG development, as well as potential suggestions for improvement).
Wiki Tool Development 4 We developed a conventional wiki website using MediaWiki so ware and
made accessible through the Freya website, called FreyaWIKI [27]. During the
preparation phase, we rst conducted in-depth interviews to obtain initial content
for the wiki. Next, we structured the wiki tool according to the topics of the recommendations derived from the interviews.
Obtaining Initial Content of the Wiki Tool from In-Depth Interviews
To obtain the initial content for this wiki, we rst conducted 12 semistructured in-depth interviews with infertile couples during di erent phases of care, from the rst visit to the general practitioner, to (non)pregnant status a er completing medically assisted reproduction techniques [28]. Patients visiting outpatient clinics in Nijmegen and Amsterdam were consecutively invited to participate through an information letter. Subsequently, 1 researcher (EB) obtained the nal consent by telephone. Participants were asked to specify perceived bottlenecks in their fertility care pathway, using an interview guide including the main treatment stages of their fertility care pathway (e.g., treatment by a general practitioner, gynaecologist, or urologist). Interviews were audiotaped and transcribed verbatim. Next, a researcher (EB) and the chief executive of Freya (JK) independently translated these bottlenecks into dra patient recommendations. ese dra recommendations were formulated as “I want my doctor to....” Consensus on the formulation of patient dra recommendations was reached through discussion.
Wiki for patient participation
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