Page 53 - Shared Guideline Development Experiences in Fertility Care

with key gures, and a written questionnaire survey among all participants. An independent researcher (MS) conducted the interviews and collected the data.
Data collection
Examination of secondary resources
We collected all the project data from the project descriptions and minutes of meetings to determine whether the project was carried out as planned.
Interviews with key gures 3 We conducted eight semistructured, in-depth, telephone interviews with eight key
gures: the chairpersons of the four MoG groups, four members of the MuG group,
and the steering committee (one patient representative, two project leaders, and
the project coordinator). We asked the interviewees to chronologically describe the guideline development and their activities in the project. We asked for comments on the overall organization, the methodology of the network approach, and the methods of patient involvement. en we asked for suggestions to improve the approach. Full interviews took approximately 30 min each, and they were fully transcribed verbatim.
Questionnaire survey
We based our questionnaire on the interview results so that we could assess participant experiences and measure the time needed for the project. e rst part of the four-part questionnaire asked about participants’ background characteristics. e second part pertained to participants’ involvement in the preparation and development phase and the time (excluding travel) needed for each of these phases. e third part included ve open questions about the network approach (e.g., the methodology and guideline integration), patient involvement, wiki methodology, and patient contributions to the guideline. e fourth part asked participants to describe facilitators of and barriers to the approach and to suggest improvements. All participants received the questionnaire by post, a er the dra guidelines were completed. A reminder was sent six weeks later.
Data analysis
We used SPSS (version 16.0 for Windows, Data Entry 4.0, SPSS, Chicago, Ill.) to perform descriptive statistics (frequencies, medians, and ranges) on participant
Patient-centred network approach
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