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role in scoping guidelines. As guidelines are currently being transformed from ‘cookbooks’ to documents based on clinical issues that need improvement while, for example, reducing practice variation or optimizing patient care or patient safety, the involvement of patients in this phase may help to ensure guidelines address issues that are relevant and important to them too. e study presented in Chapter 3 shows that actual involvement of patients from the start of the scoping process can make the guideline more tailored and responsive to patients in terms of key questions and de ned outcomes regarding fertility care. We therefore suggest that guideline developers and policymakers use this approach in other areas as well. In the era of high-quality patient-centred care, this approach may positively impact patient satisfaction, care costs, and improved outcomes [46]. Future studies on the actual impact on the implementability of guidelines and on the quality of care may support our recommendation to use this approach systematically. Finally, this approach could be used to identify patients’ needs for tailored information or to select important questions for developing tools that facilitate shared decision- making in the clinical setting.
Figure 1: Shared guideline development: the scoping process (Chapter 3)
Discussion
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