Page 115 - Shared Guideline Development Experiences in Fertility Care
P. 115

Online tool for patient partnership in guidelines
References
1. Hibbard JH, Greene J. What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs. Health A  2011;32:207-214.
2. Greene J, Hibbard JH, Sacks R et al. Engagement: When Patient Activation Levels Change, Health Outcomes And Costs Change, Too. Health A  2015;34:3431-437.
3. Richards T, Godlee F.  e BMJ’s own patient journey. BMJ 2014;348:3726.
4. Richards T, Montori VM, Godlee F et al. Let the patient revolution begin. BMJ 2013;346:2614
5. Tuil WS, Verhaak CM, Braat DD et al. Empowering patients undergoing in vitro fertilization by providing Internet access to medical data. Fertil Steril 2007;88:361-368.
6. Samoocha, D, Bruinvels DJ, Elbers NA et al. E ectiveness of web-based interventions on patient empowerment: a systematic review and meta-analysis. J Med Internet Res 2010;12:23.
7. Irizarry T, DeVito Dabbs A, Curran CR. Patient Portals and Patient Engagement: A State of the Science Review. J Med Internet Res 2015;17:148.
8. van der Eijk, M, Faber MJ, Aarts JW et al. Using online health communities to deliver patient-centered care to people with chronic conditions. J Med Internet Res 2013;15:115.
9. Archambault PM, van de Belt TH, Grajales III et al. Wikis and collaborative writing applications in health care: a scoping review. J Med Internet Res 2013;15:210.
10. Archambault PM. WikiBuild: a new application to support patient and health care professional involvement in the development of patient support tools. Journal of medical Internet research 2011;13:114.
11. Nilsen ES, Myrhaug HT, Johansen M et al. Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material.  e Cochrane Library 2006;3:1-25.
12. Institute Of Medicine (IOM). Clinical Practice Guidelines we can Trust. Washington, DC: National Academy Press, 2011.
13. van Wersch A, Eccles M. Involvement of consumers in the development of evidence based clinical 5 guidelines: practical experiences from the North of England evidence based guideline development
programme. Qual Health Care 2001;10:10-16.
14. Bastian H. Raising the standard: practice guidelines and consumer participation. Int J Qual Health Care 1996;8:485-490.
15. Rogers WA. Are guidelines ethical? Some considerations for general practice. Br J Gen Pract 2002;52:663-668.
16. Diaz Del Campo P, Gracia J, Blasco JA et al. A strategy for patient involvement in clinical practice guidelines: methodological approaches. BMJ Qual Saf 2011;20:779-84.
17. Legare F, Boivin A, van der Weijden T et al. Patient and public involvement in clinical practice guidelines: a knowledge synthesis of existing programs. Med Decis Making 2011;31:45-74.
18. Boivin A, Currie K, Fervers B et al. Patient and public involvement in clinical guidelines: international experiences and future perspectives. Qual Saf Health Care 2010;19:e22.
19. 34. Krahn M, Naglie G.  e next step in guideline development. J Am Med Assoc 2008;300:436–438.
20. den Breejen EM, Nelen WL, Knijnenburg JM et al. Feasibility of a wiki as a participatory tool for
patients in clinical guideline development. J Med Internet Res 2012;14:e138.
21. Gupta D, Rodeghier M, Lis CG. Patient satisfaction with service quality in an oncology setting:
implications for prognosis in non-small cell lung cancer. Int J for Qual in Health Care 2013;25:696-703.
22. Nachtigall RD, Castrillo M, Shah N et al.  e challenge of providing infertility services to a low-income
immigrant Latino population. Fertil Steril 2009;92:116-23.
23. Boivin J, Bunting L, Collins JA et al. International estimates of infertility prevalence and treatment-
seeking: potential need and demand for infertility medical care. Hum Reprod 2007;22:1506–1512.
24. Zegers-Hochschild F, Adamson GD, de Mouzon J et al.  e International Committee for Monitoring Assisted Reproductive Technology (ICMART) and the World Health Organization (WHO) Revised Glossary on ART Terminology. Hum Reprod 2009;24:2683-7.
113


































































































   113   114   115   116   117