Page 105 - Shared Guideline Development Experiences in Fertility Care

Online tool for patient partnership in guidelines
network guideline on subfertility [20,29]. ese initial recommendations for high-quality fertility care were distributed according to seven di erent phases of fertility care: General care (n=3), General practitioner care (n=5), Gynaecologic care (n=5), Urologic care (n=5), and Laboratory phase (n=3). To help participants search existing recommendations, a search engine was added to each page of the website. Furthermore, participants were asked to rate (1–5 stars) the existing recommendations, including their own recommendation(s), according to each one’s level of importance for high-quality fertility care. e actual top ve per care phase were illustrated on the individual recommendation pages. A discussion forum page and a chat page provided visitors the opportunity to discuss the recommendations with co-users of the tool.
Evaluation of the tool
Study population
Potential participants for the evaluation of the tool were invited through an advertisement on the website of the previous pilot version of the basic wiki tool
[20]. Furthermore, they were invited through mailings to members of Freya, advertisements in Freya’s quarterly journal, links on Freya’s website, links on 5 websites of allied professional societies (i.e. general practitioners, gynaecologists,
urologists, and clinical embryologists), and links on social media channels (i.e. Twitter and Facebook). In addition, we sent advertising posters and business cards to all 103 Dutch clinics o ering fertility treatments in the Netherlands for their waiting rooms at the departments of urology and gynaecology.
Evaluation design of the tool
We evaluated the tool with automatically generated data and questionnaires regarding its use and bene ts for CPG development. Outcome measurements for use included: actual use of the tool (number of unique visitors, registered participants, and visits), the usability of the tool, and representativeness of participants. Outcome measurements to evaluate its bene ts for CPG development included: number of newly developed and modi ed recommendations, number of performed prioritizations (total and per care phase), and the change over time of the top ve recommendations (overall and per care phase).
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