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Parkinsonism in GNDs492Financial disclosures related to this manuscriptNone.Financial disclosures for the previous 12 months, not related to this manuscriptErik Boot and Thérèse van Amelsvoort are on the advisory board of the 22q11 society and Stichting Steun 22q11. Tom de Koning is medical advisor for three non-profit charities: Stofwisselingskracht foundation (Stichting Stofwisselingskracht), North Sea myoclonus foundation (Stichting Noordzeeziekte) and JanIvo Foundation (janivo stichting). Tom de Koning is also medical advisor of Ancora Health BV (profit), a Dutch company delivering lifestyle advise of which he also holds shares. Agnies van Eeghen is chair of the scientific advisory board of the Dutch TSC Foundation, medical advisor of Jazz pharmaceuticals, and is affiliated with European Reference Network ITHACA. The other authors have no disclosures to report.Competing interests The authors report no competing interests.Ethical compliance statementWe confirm that we have read the Journal’s position on issues involved in ethical publication and affirm that this work is consistent with those guidelines. The authors confirm that the approval of an institutional review board was not required for this work. The authors confirm that patient consent was not required for this work.Supplementary materialAdditional data is available in the Supplementary Material (online).